Posted by: James | May 19, 2008

Priest Bans Autistic Boy from Church

Mom Told She’d Be Sent to Jail if She Brought Autistic Son to Church

A Catholic priest has filed a restraining order against the parents of a severely autistic 13-year-old boy in an effort to keep him from attending the church in Bertha on Sundays.

Priest files restraining order against parents with “unruly” autistic 13-yr-old.

The Rev. Daniel Walz alleges that Adam Race’s unruly behavior endangers others who attend the Church of St. Joseph.

Race’s parents have ignored the restraining order, calling it discriminatory, and Carol Race, Adam’s mother, was cited by police and is due to appear in court on Monday for violating the order.

“He said that we did not discipline our son. He said that our son was physically out of control and a danger to everyone at church,” Carol Race said. “I can’t discipline him out of his autism, and I think that’s what our priest is expecting.”

Carol Race said it all started last June, when Walz and a church trustee visited the Races at their home address the behavior of Adam, who stands taller than six feet and weighs more than 225 pounds.

Watch the video here:

http://abcnews.go.com/TheLaw/story?id=4885322

Posted by: James | May 14, 2008

Autism Speaks Joins the Arizona Autism Community

NEW YORK, NY (March 21, 2008) — Autism Speaks today joined Arizona families and other autism advocacy organizations in applauding Governor Janet Napolitano and the state’s legislators for enacting House Bill 2847, which will require insurance carriers to provide coverage of evidence-based, medically necessary autism therapies. In many states, insurers explicitly exclude coverage of these therapies from policies, which places a significant financial burden on families seeking to provide their children with necessary services. Autism Speaks has launched a multi-state initiative to address this discrimination. 

Read More…

Posted by: Aimee | April 28, 2008

Untitled

 

Untitled

by Aimee Gilman

 

 

He came into the world the way they all do…

I suppose; I really wouldn’t know

of any of the ways of what they all do.

He was never like them.

Apart from the warmth of all of him; a

glowing light that shone, then dimmed,

then shone again,

but only to some of us;

the rest of you were by the way.

He was apart; not a part of the world;

only his world.

The doors, the fans, the movement

of his fingers in front of his face.

The pain and pride in watching him,

always there.

When the fingers stopped flicking and

the doors were replaced by DOOM,

the aching, painful hurt stayed;

marching stride for stride with the pride—

how can that be?

Now I see—no guardian ever

lets his guard down – not really.

It is always in that moment that

the weapon is thrust to its hilt.

The pride is greater than for others, and their mothers;

I know; the pain too. These are

the special rewards of autism.

 

 

Posted by: that neophyte weblogger | April 28, 2008

Autism Bulletin

Autism: “The musical ”

http://autismbulletin.blogspot.com/

Posted by: James | April 28, 2008

Autism’s mysteries remain as numbers grow

This is very interesting.  It is one of those things that you say, “Let’s fix it!” but then where do you begin?  What is the root cause?  Is it prenatal?  Is it the food?

http://www.cnn.com/2008/HEALTH/conditions/03/31/autism.main/index.html

Posted by: James | March 25, 2008

Hope!

This page is dedicated to higlighting the successes of our special kids, the parents who tirelessly advocate for them as well as the professionals and organizations who are dedicated to enriching the lives of our children. Please submit your stories so we can all celebrate HOPE!
Posted by: James | March 25, 2008

A Boy the Bullies Love to Beat Up, Repeatedly

All lank and bone, the boy stands at the corner with his younger sister, waiting for the yellow bus that takes them to their respective schools. He is Billy Wolfe, high school sophomore, struggling.

Moments earlier he left the sanctuary that is his home, passing those framed photographs of himself as a carefree child, back when he was 5. And now he is at the bus stop, wearing a baseball cap, vulnerable at 15.

A car the color of a school bus pulls up with a boy who tells his brother beside him that he’s going to beat up Billy Wolfe. While one records the assault with a cellphone camera, the other walks up to the oblivious Billy and punches him hard enough to leave a fist-size welt on his forehead.

The video shows Billy staggering, then dropping his book bag to fight back, lanky arms flailing. But the screams of his sister stop things cold.

The aggressor heads to school, to show friends the video of his Billy moment, while Billy heads home, again. It’s not yet 8 in the morning.

Bullying is everywhere, including here in Fayetteville, a city of 60,000 with one of the country’s better school systems. A decade ago a Fayetteville student was mercilessly harassed and beaten for being gay. After a complaint was filed with the Office of Civil Rights, the district adopted procedures to promote tolerance and respect — none of which seems to have been of much comfort to Billy Wolfe.

It remains unclear why Billy became a target at age 12; schoolyard anthropology can be so nuanced. Maybe because he was so tall, or wore glasses then, or has a learning disability that affects his reading comprehension. Or maybe some kids were just bored. Or angry.

Whatever the reason, addressing the bullying of Billy has become a second job for his parents: Curt, a senior data analyst, and Penney, the owner of an office-supply company. They have binders of school records and police reports, along with photos documenting the bruises and black eyes. They are well known to school officials, perhaps even too well known, but they make no apologies for being vigilant. They also reject any suggestion that they should move out of the district because of this.

The many incidents seem to blur together into one protracted assault. When Billy attaches a bully’s name to one beating, his mother corrects him. “That was Benny, sweetie,” she says. “That was in the eighth grade.”

It began years ago when a boy called the house and asked Billy if he wanted to buy a certain sex toy, heh-heh. Billy told his mother, who informed the boy’s mother. The next day the boy showed Billy a list with the names of 20 boys who wanted to beat Billy up.

Ms. Wolfe says she and her husband knew it was coming. She says they tried to warn school officials — and then bam: the prank caller beat up Billy in the bathroom of McNair Middle School.

Not long after, a boy on the school bus pummeled Billy, but somehow Billy was the one suspended, despite his pleas that the bus’s security camera would prove his innocence. Days later, Ms. Wolfe recalls, the principal summoned her, presented a box of tissues, and played the bus video that clearly showed Billy was telling the truth.

Things got worse. At Woodland Junior High School, some boys in a wood shop class goaded a bigger boy into believing that Billy had been talking trash about his mother. Billy, busy building a miniature house, didn’t see it coming: the boy hit him so hard in the left cheek that he briefly lost consciousness.

Ms. Wolfe remembers the family dentist sewing up the inside of Billy’s cheek, and a school official refusing to call the police, saying it looked like Billy got what he deserved. Most of all, she remembers the sight of her son.

“He kept spitting blood out,” she says, the memory strong enough still to break her voice.

By now Billy feared school. Sometimes he was doubled over with stress, asking his parents why. But it kept on coming.

Heh-heh.

According to Alan Wilbourn, a spokesman for the school district, the principal notified the parents of the students involved after Ms. Wolfe complained, and the parents — whom he described as “horrified” — took steps to have the page taken down.

Not long afterward, a student in Spanish class punched Billy so hard that when he came to, his braces were caught on the inside of his cheek.

So who is Billy Wolfe? Now 16, he likes the outdoors, racquetball and girls. For whatever reason — bullying, learning disabilities or lack of interest — his grades are poor. Some teachers think he’s a sweet kid; others think he is easily distracted, occasionally disruptive, even disrespectful. He has received a few suspensions for misbehavior, though none for bullying.

Judging by school records, at least one official seems to think Billy contributes to the trouble that swirls around him. For example, Billy and the boy who punched him at the bus stop had exchanged words and shoves a few days earlier.

But Ms. Wolfe scoffs at the notion that her son causes or deserves the beatings he receives. She wonders why Billy is the only one getting beaten up, and why school officials are so reluctant to punish bullies and report assaults to the police.

Mr. Wilbourn said federal law protected the privacy of students, so parents of a bullied child should not assume that disciplinary action had not been taken. He also said it was left to the discretion of staff members to determine if an incident required police notification.

The Wolfes are not satisfied. This month they sued one of the bullies “and other John Does,” and are considering another lawsuit against the Fayetteville School District. Their lawyer, D. Westbrook Doss Jr., said there was neither glee nor much monetary reward in suing teenagers, but a point had to be made: schoolchildren deserve to feel safe.

Billy Wolfe, for example, deserves to open his American history textbook and not find anti-Billy sentiments scrawled across the pages. But there they were, words so hurtful and foul.

The boy did what he could. “I’d put white-out on them,” he says. “And if the page didn’t have stuff to learn, I’d rip it out.”

In ninth grade, a couple of the same boys started a Facebook page called “Every One That Hates Billy Wolfe.” It featured a photograph of Billy’s face superimposed over a likeness of Peter Pan, and provided this description of its purpose: “There is no reason anyone should like billy he’s a little bitch. And a homosexual that NO ONE LIKES.”

http://www.nytimes.com/2008/03/24/us/24land.html?pagewanted=2&ei=5070&en=afe416f794889421&ex=1207022400&emc=eta1

Posted by: James | March 25, 2008

ABC News: Autistic teen communicates via computer

These accounts include video of this 13-year-old as a young child and a shot of a report diagnosing her with autism and developmental delay.

This is provided to you as part of a LEND technical assistance project to keep you abreast of current popular media items and Internet news of potential interest.

Patricia Cloppert, Faculty Parent Advocate http://medicine.osu.edu/LEND/

Posted by: James | March 25, 2008

LIVING LIFE IN THE FAST LANE—WITHOUT BRAKES

Bestselling Author’s New Book Explores the Challenges of ADHD

“It is not that Johnny doesn’t care about the future; it is that the future and the past don’t even seem to exist. Such is the nature of the disability,” writes Dr. Martin L. Kutscher, author of the best-selling Kids in the Syndrome Mix of ADHD, LD, Asperger’s, Tourette’s, Bipolar, and More! Dr. Kutscher is referring to Attention Deficit Hyperactivity Disorder (ADHD) which, according to the Centers for Disease Control, affects 4.4 million children ages 4 through 17—a full 7.8% of the school-aged population.

In his new book, ADHD—Living without Brakes, [Jessica Kingsley Publishers, February 2008, 192 pages, hardback, 978-1-84310-873-3, $19.95], Dr. Kutscher presents a concise and highly accessible look at what parents and busy professionals need to know about ADHD.

“The idea was to be brief, but not ‘dumbed down.’ Realistic, yet optimistic,” writes Dr. Kutscher. He describes the spectrum of ADHD and its co-occurring symptoms and addresses common difficulties that parents face. Living without Brakes focuses on solutions based around four rules (keep it positive, keep it calm, keep it organized and keep repeating and enforcing rules one through three). Kutscher emphasizes that treating ADHD “is not war. We are all on the same team. It is hard work, but you will make it through this. You have no other choice.”

Dr. Kutscher also discusses the often controversial subject of using psychoactive drugs to treat ADHD. Although he reinforces that medication is never the first or only choice of treatment, he does advocate the use of medication if behavioral strategies prove ineffective. “We don’t tell a person with epilepsy to ‘Just get your act together!’ We don’t tell people screaming in pain from a migraine that she just needs more willpower in order to stop her vomiting and headache,” Dr. Kutscher writes. “Unfortunately, many of us are still a few centuries behind when it comes to psychiatric disease, blaming it on the very people who are trying to cope with their conditions.” In fact, as Dr. Kutscher points out, multiple studies show that the use of stimulants in ADHD children is associated with a greatly reduced risk of future substance abuse (when compared to ADHD children who are not successfully treated). 

Perhaps, most importantly, Dr. Kutscher expounds the belief that although ADHD is a disability, it is not without its benefits. He writes that ADHD is sometimes, “fantastic and enviable. While the rest of us are obsessing about the future, or consumed with the past, people with ADHD are experiencing the present. Their flux of ideas may lead to creative innovations. And most importantly, their extreme passion can be a source of inspiration and accomplishment to the benefit of us all.”

Martin L. Kutscher, MD, is Assistant Clinical Professor in the Departments of Pediatrics and Neurology of New York Medical College in Valhalla, NY, and has worked in the Rye Brook, New York area since 1987 with children who have special neurological needs. Dr. Kutscher is board certified in Pediatrics and in Neurology with Special Qualifications in Child Neurology. He received his BA from Columbia University, his MD from Columbia University’s College of Physicians and Surgeons and completed a pediatric residency at Temple University’s St. Christopher’s Hospital for Children. His neurology residency and pediatric neurology fellowship were completed at the Albert Einstein College of Medicine. He is the author of Kids in the Syndrome Mix of ADHD, LD, Asperger’s, Tourette’s, Bipolar, and More! The one stop guide for parents, teachers, and other professionals and Children with Seizures: A Guide for Parents, Teachers, and Other Professionals, both published by Jessica Kingsley Publishers.

###

For further information or for a review copy, please contact:

Teresa Finnegan, Jessica Kingsley Publishers, 400 Market Street, Suite 400, Philadelphia, PA  19106, USA

Tel: (215) 922-1161; Fax: (215) 922-1161; email: teresa.finnegan@jkp.com

Posted by: James | March 24, 2008

Surveying the Landscape

This is one of Aimee’s famous (or not so famous) humor pieces.
Click to open.  Enjoy!

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